I really don't think its so uncommon. Multiple family members, married in family members, and friend show symptoms. (A few beeing really see through skin, stretchy skin, and loose joints (they can bend their fingers back un naturally etc.) I just don't think it's correctly diagnosed or acknowledged as an issue (They dont know they have it.)
Yep! And POTS, doctors actually call those three the EDS trifecta. I also have CRPS, esophageal dismotility, severe GERD, unknown cause of intermittent leg paralysis, suspected gastroparesis, possible CSF leak, and a host of other comorbititiesSo you have MCAS too?
Really though, I think they are linked. I also think it's a lot more common they we think.
My parents are from two different parts of America, and their lineage is from two different countries, and they both have EDS.
It’s underdiagnosed. There’s different severities, so some people may not get the bad end of the syndrome. and even if some don’t have EDS, HSD is very under diagnosed in the population
Sounds like you are doing everything possible to help with your teeth.I am now having a xylitol mint after eating, I'm hoping it will help. It is supposed to help heal your enamel. I wear a mouthguard at night as I grind my teeth due to my loose jaw from EDS. I also can wear high heels because the joints that hold my ankles together are loose and I am more at risk for a sprain or twist. My grace has gotten better as I age lol, and I do wear shorter blocky heels once in a while. (Don't judge me, I can't resist!)
I also have mast cell activation syndrome which causes the little mast cells to fire (for me in my stomach and my sinuses). It causes me to get severe sinus headaches and vomiting episodes. I normally just get the head stuff now but when I was younger I would have weekly episodes. I dry heaved so much I tore the valve in my stomach.
On top of all that I have Gastroparesis due to the mast cells firing in my stomach.It caused my stomach not to work properly so the food will sometimes sit in my stomach for a day or two before I have a vomiting episode.
Whenever we got a stomach bug I got it worse.
Oh man Bettas... I'm so sorry to hear that. Must have been hard to see your mom go through that
It’s much more common in women than men, and the effects of it are also generally more severe in women
Oh... So my hypothesis was correct!
Just the nature of the disease I guess, if you have the worse end of it it will cause more complications and then the complications will cause other complications
Yea but also no
Woodworking bros!!
