- Joined
- May 19, 2022
- Messages
- 2,313
- Reaction score
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Is there a web site for your issues that takes donations for research? If so I'd appreciate a link to the site.Yes I avoid ibuprofen and most painkillers for a variety of reasons
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Is there a web site for your issues that takes donations for research? If so I'd appreciate a link to the site.Yes I avoid ibuprofen and most painkillers for a variety of reasons
There are a few. I can get linksIs there a web site for your issues that takes donations for research? If so I'd appreciate a link to the site.
Pick the one that you feel does the best job and I'll throw something at them.There are a few. I can get links
Is there a web site for your issues that takes donations for research? If so I'd appreciate a link to the site.
Done. Anyone going to join me?Periodic paralysis
Complex regional pain syndrome
Another CRPS this one isn’t research but I love it, it’s made a big difference for me
https/www.thenorrislab.com/research/ehlers-danlos-syndrome - this is the best place to donate for EDS research, they have made WAY more progress than the EDS society, and they have programs for patients with EDS to work on studying their own disease.
Gastroparesis
Mast cell activation syndrome
POTS and other dysautonomias
MALS -we aren’t 100% sure if I have this but we are consulting with surgeons who may be able to help if this is the case
If I was to choose which one I’d prefer to be dontated to, it would be the periodic paralysis association. They have been suuuuper helpful with me in my journey for a diagnosis, so that or the Norris lab. You’re awesome!!
Oh how I want to donate so so much.... I would. But sadly I'm actually being honest when I say that my parents would not allow me toDone. Anyone going to join me?
Overhere we call such moms "Torturemoms" hahahaha.Yeah I know... My mom uses it as a threat.
She's like: "You need to use saltwater to help your throat" and I just look at her like: "No please no"
And then she is like: "You will either do saltwater OR vinegar. If you choose not to use saltwater you WILL use the vinegar."
I'm team saltwater 100%. I ABSOLUTELY HATE the taste of vinegar. I'm a wimp when it comes to using vinegar in my mouth