What are you doing today?
- Thread starter connorlindeman
- Start date
Mm mm mm... This one I made up is FOR SURE salty.
Burning alive 
OP
OP
It really is.
Burning alive
I'm so sorry Juice. Is it your CRPS again?Really hope it passes quickly
Yes. It won’t, it’s a forever kinda thing but thanks
Really hope it passes quickly
Wait, it doesn't come and go in waves? It's just constantly there? I thought it faded in and outYes. It won’t, it’s a forever kinda thing but thanks
The severity fluctuates but yes it’s always there no matter what
Wow.... I thought it gave you a break at least every now and then... I knew it would most likely always be with you but not like that. That's horrible
I'm very sorry, and I know you get a lot of sorries but I don't know what else to say... I wish I could take your pain away somehow
I wasn’t trying to get pityWow.... I thought it gave you a break at least every now and then... I knew it would most likely always be with you but not like that. That's horrible
I'm very sorry, and I know you get a lot of sorries but I don't know what else to say... I wish I could take your pain away somehow
just saying what I’m doing today. Lol. Yeah it doesn’t go away unless you’re in remission. and even then, it’s never FULL remission, you have a lot of the other symptoms and the other pain, just not the burning.
Juice. It's not about if you were trying to get pity or not, I'm your friend. I care. You say you're hurt, and I'm hurt. That's just how it is with me. And if I wasn't hurt when you say you're hurting, what type of friendship is that?I wasn’t trying to get pity
That just sounds really bad. I'm sorry. I wish there was more I could say or do at the moment... My mind sometimes goes blank in these situations
What's the longest remission you've had if you mind me asking?
Started at 14, went into remission at 15, came back at 18. Once it comes OUT of remission it’s much harder to get it to go back into remission a second time. None of the treatments that helped before have made a difference this time, and it has spread
Are those ages or years?
I'm guessing ages but I'm unsure.
So the longest remission was 3 years... I guess any amount of time with a lesser amount of pain is good.
Oh didn't see all this the first time strangely... Sorry.
Yah, that doesn't sound good at all. And it spread as well?... Jeez.
Btw when I mentioned years I didn't mean years as in time periods like you were saying 14 years. I meant like you could have been saying years. 2014. 2015. 2018. Like that lol
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