out of time. Mum at end stage.

The majority of people I phoned were super nice and sympathetic.
That's true, I've found the same. The vast majority really empathetic, some even shared their own stories of loss and how they coped.

Only unsympathetic and downright cruel person I've dealt with so far was one of the staff at a funeral home, of all places!!! Who knew full well that it had only been two days since mum's passing and that I was a wreck - because some other lower member of staff had called earlier that morning and gotten a confused and half asleep response from me, and not made it clear that there was a problem - and the awful woman mentioned that I wasn't able to understand the earlier call. But it didn't stop her hassling me more only a few hours later, being brutally icy and unhelpful, and talked their business out of an extra £5,000 and likely earned a formal complaint.

Oh, they confirmed today that they're removing those insane £25 per day daily fees from the invoice and waiving them.

I got some more cleaning, re-arranging of furniture, and deep cleaning done in the living room, and master bedroom; while roping my bro into helping me and teaching him cleaning basics and tips at the same time.

The mountain of jobs to do hasn't diminished much yet, but progress is progress. Can't eat an elephant with one bite.
 
Melatonin is found in sour cherries and eating a small bowl of them at night about 30 minutes before bed can help you get to sleep.

Ooohh, I love cherries when they're in season!

Sour cherries? Are they available to buy in like, jars or tins or similar?
Seratonin

LIGHTS
Both very true and I'm working on them, thank you! :)
Windows 10 computer operating system allows you to adjust the Kelvin (temperature) of the screen. I have mine set at 6500K during the day and at 7pm I get it to switch to 3000K. It stays at 3000K until 9am then goes up to 6500K. This way I am not being kept awake in the evening by the monitor putting out heaps of blue light.

True, and I do have the night-time setting etc set on this computer so it automatically fades as the evening draws in, and changes the light settings. One thing my brother is useful for is anything techy, and I've always liked having the night setting for years, so asked him to sort that when he set up the laptop for me, haha :lol: I do appreciate that about him, he can be helpful in many ways, just have to ask.

I think for me, the laptop/internet/screens are more a problem of keeping me mentally stimulated and engaged, and avoiding going to bed, and I definitely need to get firmer with myself and give myself a "bedtime"! to get offline and get lost in a book.
BEFORE BED
If the show is boring (not exciting) and not loud, you can normally fall asleep easily. Having a tv on before bed can help clear bad thoughts running through your head and stop you having bad dreams.

Odd story time - one of my ex boyfriends claimed he couldn't sleep without a DVD playing. Fairly loudly and without headphones.

Only two DVDs were acceptable, either "Black Books" or "Peep Show". Those are two of my all time favourite British comedy series, so I didn't object too much at first, since I was enjoying rewatching them. But we all know what a DVD does when it's finished, right? Returns to the main page and repeats the theme tune. Over. And over. And over.

I swear, half the reason we broke up was because I was beginning to loathe the theme tunes and he was beginning to ruin those shows for me.
Try to do the probate stuff yourself, with the help of others (bank, gov, community groups, etc) and if it gets too much, then pass it off to a lawyer. You don't need an advanced degree in maths, just go through things one day at a time and try to do it. There is a calculator on most mobile phones and all computers and they are good for adding and subtracting. :) But personally I think $6500 is a bit much to go through someone's paperwork, but I don't like most lawyers either :)

I'm with you! Besides, half the reason I'm reluctant is that even if I hired them, I'd still have to be the one wading through the house, finding and organising all the papers, and that's going to be the hardest part really. I'd have to find the right papers to give them, just to have them call the banks and tax departments on my behalf? What work are they really saving me? That's the part I'm dreading the most, but will have to do either way!

I hope I didn't tempt fate with that statement...!

At the moment I'm trying to shift my focus to preparing for the funeral, which includes shifting furniture around, and plan to move a desk and bookshelves to create a temporary office space and add to it as I find paperwork, so it'll still be making progress towards getting this stuff done.

Currently I'm thinking hopefully I can get it done myself, with help from CAB/St Peter's Social Work Team/Whoever else I can rope into it - then if I'm finding it too much, or I get stuck, or it's towards the end of the process and just about someone dotting the i's and crossing ts, then hopefully I can get a much lower quote from some bloodsucking lawyer, if most of the process has been handled already.

Cross fingers for me! :):lol:

And thank you, @Colin_T for all the excellent advice! I appreciate it so much!
 
Only unsympathetic and downright cruel person I've dealt with so far was one of the staff at a funeral home, of all places!!! Who knew full well that it had only been two days since mum's passing and that I was a wreck - because some other lower member of staff had called earlier that morning and gotten a confused and half asleep response from me, and not made it clear that there was a problem - and the awful woman mentioned that I wasn't able to understand the earlier call. But it didn't stop her hassling me more only a few hours later, being brutally icy and unhelpful, and talked their business out of an extra £5,000 and likely earned a formal complaint.
:angry: I always wonder, how miserable a person do you have to be to treat people who have lost a loved one that way? One time when Mrs. Badger was in the hospital for a long, life-threatening, extremely painful illness, she had a nurse who was being very short and grouchy (not to mention incompetent). I finally took her aside and told her, "Ma'am, I'm sorry you're having a bad day, but I can assure you my wife is having an even worse day. Please be nice."

It sounds like overall people are being helpful, though. That's good. I'm sorry if you already said this, but when is the funeral? I bet it will be good to get that done and on with life. Hang in there, friend.
 
:angry: I always wonder, how miserable a person do you have to be to treat people who have lost a loved one that way? One time when Mrs. Badger was in the hospital for a long, life-threatening, extremely painful illness, she had a nurse who was being very short and grouchy (not to mention incompetent). I finally took her aside and told her, "Ma'am, I'm sorry you're having a bad day, but I can assure you my wife is having an even worse day. Please be nice."

Yep. I can only guess the one I dealt with was dealing with something horrible in her own personal life... same with nurses. Most wonderful, some terrible and should have their licence to practice removed, and some are complex human beings having a bad day, and may well feel remorse later, and are going through something really hard in their own personal life, but have to work through it.

But whether going through anything in their personal lives or not, nurses can't and shouldn't treat a patient like that. Ever. You did exactly the right thing as a family member by stepping in and protecting your wife, and I hope that nurse stepping away and had someone else take over?

I'm also fiercely protective when it comes to vulnerability. Elderly people, children, vulnerable adults, animals - it takes a special kind of evil to mistreat people or creatures that can't fight back, aren't on an equal footing, and stories like the above make me angry.


I was protective over my parents too. For the last 2-3 years of dad's life he had leg ulcers that refused to heal due to poor circulation in that limb. Before he broke his hip aged 83, he'd walk to the surgery and back twice a week to have them washed and redressed.

After he broke his hip, district nurses needed to come to the house to wash and dress them, and the frequency would vary depending on how they were, or weren't, healing, so sometimes up to 3-4 times a week a nurse would come to the house. My dad was an endearing old man, got on well with most people, and the nurses were wonderful, most enjoying talking to him/nagging him in that stern but nice way some nurses have, and generally being lovely. We always offered a drink, tea/coffee etc too, and thanked them for their work.

All but one nurse. One visit. It had been about a year since he broke his hip, and he was a proud, active, independent man his whole life. Always walked, breaking his hip and having to rehab after a hip replacement in order to regain his mobility was hard for him, and he worked really, really hard at pushing himself further and further, harder and harder, because he wanted to be able to join me walking Pixie in the park across the street.

Stopping him from over-doing it was the problem, not pushing him. He got used to using zimmerframes, and eventually graduated to a rollator for outdoor use, which he was desperate for after months in the house. He did very well for a man of his age, the physio commented that him being an active man in good shape for his age likely made that difference. Within a week of the op he was home, and able to do the (steep and narrow) stairs at home, and use a zimmerframe on each floor to move around the house independently, we already had strong bannisters and some grab handles around the house from when my mum had spinal surgery like a decade ago.

His first few trips outside, my bro and I both insisted we be with him, and no sneaking out without one of us. uneven pavement was more of a challenge, and he tired more quickly than he used to, but he insisted on making it to the first lampost and back, and he did it! He was so excited. He did that daily with one of us with him, and built up to walking to the next lampost, extending his distance and stamina gradually.

Eventually, he did make it to the park with us. The park is literally across the street, so only involves waking a short distance down our street, crossing the road, entering the park entrance, which has wide, smooth, disability friendly paths, and reaching the first, very close bench, where he then sat and enjoyed watching Pixie and I as I walked her around, and she ran around off-lead etc, then I'd meet him back at the bench to walk home together. He got to see all the dog-walking neighbours and friends he's known for years, and their dogs, that know well he always had dog treats in his pocket!

It was wonderful for the three of us, and I treasure those memories. His next goals were to walk a bit further when he could manage it, and reach the next bench, and he managed that on the 2nd and 3rd times he came with me. He happened to mention this to this one nurse, and she began to berate him, saying that if he's mobile now, he doesn't need nurses to come to the house anymore. He tried to explain that he's only just regaining some mobility, was only able to do short bursts nearby, the surgery is much further away, we didn't have a car, and he hadn't been able to get into a car yet anyway, since the height difference and bending like that was difficult for him.

She didn't listen, raised her voice, and raised her voice loudly enough and angrily enough for me to hear her from upstairs! I came to the hallway to listen, and heard her berating him, her angry tone, raised voice, my mum trying to speak to intervene, in a weak and polite voice, and this woman basically shout at her, repeating her own points about how he should be going to the surgery, how in demand they are and short staffed etc, and mobile patients shouldn't be using district nurse services.

I came into the room and saw my dad- my usually nice and friendly, or stoic, strong or stern - on the verge of tears. I only saw that man cry maybe three times in my lifetime before then, so for him to be on the verge of tears was huge- clearly furious and upset, my mum visibly shaken, her mind wasn't as sharp as it was previously, and she was really vulnerable, and I demanded of the nurse to know what was going on.

Once she saw another adult who wasn't vulnerable, her volume dropped instantly. I was usually occupied doing household chores when the district nurses came, since they can't give appointment times precisely, but I usually never had to worry about leaving mum and dad alone with them in the living room! So maybe she hadn't realised I was in the house before she decided to take her temper out on an elderly, vulnerable and disabled couple.

I said that I'd heard her voice from the other side of the house, that this wasn't okay, and she wasn't my father's doctor, nor the head community nurse. That we had never had a problem with a nurse before, and could she finish dressing my father's leg, and then leave. She did, tried to protest somewhat about the surgery thing again, that she'd only been trying to explain, but I ignored her and asked dad if he was okay, who was trying to compose himself and just looked away, put my arm protectively around him and watched while she finished dressing his leg, then comforted mum, and the nurse hurriedly finished and left.

Mum and dad were so upset by it. Dad was saying he just wouldn't bother about his legs, and they could stop coming. Needed some time to calm down, but I think he was relieved I came in when I did. Mum was distressed too, kept saying that she'd never heard a nurse act that way before, and that she didn't let dad explain or defend himself, and wouldn't listen to her, either, when she tried to explain what dad's physio and doctors had said.

I did call the district nurse team and find out if that was true, if because he'd managed to go outside and across the road, he now counted as "too mobile" for the district nurse team to continue his care? After checking with his doctor too. And also said how unprofessionally the nurse that day had acted, how badly she'd upset my parents, but also how unusual that was. That in the years nurses had been coming to the house, we'd never had a single complaint, they'd all been lovely, and we didn't make complaints for no reason, and often praised and thanked the nurses and medical teams... but that she had crossed a line in her manner. That we didn't want to lodge formal complaints or anything, but that she needed to be talked to at least, because it really had been bad. Also put mum on the phone so she could say what happened from her point of view, before I'd come in the room.

They called back later that same day, apologising, saying that dad absolutely qualified for district nurse services due to his frailty and still very limited mobility, and that the nurse from that morning had admitted that she'd been unprofessional and that they'd absolutely respect our request that that particular nurse not come to the house again.

But that was a single nurse out of so, so many, and hopefully it was just a bad day for her, and she learned from it. The only times my mama bear comes out is when looking out for others really. Protecting parents, my pets, my loved ones. But that's the same for everyone really, isn't it? Well, most normal, decent folk anyway!
It sounds like overall people are being helpful, though. That's good. I'm sorry if you already said this, but when is the funeral? I bet it will be good to get that done and on with life. Hang in there, friend.

Funeral is 12th February.
Dad passed February 7th of 2023.

Thank you, I'm still hanging in there!
 
Ooohh, I love cherries when they're in season!

Sour cherries? Are they available to buy in like, jars or tins or similar?
Yes they are available in jars from most supermarkets. You will probably have to ask a staff member exactly where because they aren't big sellers. Where I live they have them on the top shelf in the canned fruit section. They have smaller cans of sweet/ black cherries, and larger glass jars of red sour cherries. I eat them both because they are yummy :)
 
Funeral is on Monday.

I've been a wreck this past week. Anticipating the funeral, I guess, but the grief surrounding losing dad is overwhelming too. It was February 6th last year when he went into the hospital after looking pale and shaken after a minor fall, and that night we found out he'd had an aortic anurism that had burst, and wasn't repairable. He passed on February the 7th.

The first option for the funeral date they gave me for mum was this Feb the 7th. I said no, out of gut instinct, thinking I wouldn't be able to handle both things at once, knowing that date is burned into my memory already, and when he offered the 12th instead, I said okay. I thought maybe that would be better, but in hindsight, I should have said yes to the 7th. It would have kept me busy, around others, and grieving together.

Instead, I was a wreck on the 6th and 7th, have been a depressed, useless lump and haven't done anything productive or useful since, and the house and I are a mess.

My amazing friend drove down from Nottingham today, and is due here later this evening, staying here til after the funeral. So grateful for him. Usually I'd be more prepared, excited to see him - which I am - but I'm also a mess, ashamed, and haven't done the things I would usually, like stock the fridge, plan some meals or meal prep for us, clean, tidy, make up the best with fresh bedding etc. I've done none of it yet.

I know he won't judge me. But I'm so ashamed.

My Uncle, mum and dad's lifelong closest friend lives maybe an hours drive away, and is planning to come over Sunday, return home Sunday night because of his own pets, then return Monday for the funeral, and my two cousins will arriving by train on Monday, then coming to the house.

I've been mentally yelling at myself to just get up and do it already. But the grief and depression is paralysing, and making it so much harder. This is pathetic. I have stuff to do, for my mum's sake, if nothing else, and yet I'm just broken and useless.
 
Stop beating yourself up. Nobody else that has been through anything like this does it any better. When Chloe and Louise died (in August and October 2011), it destroyed me. I couldn't do anything, I didn't go outside. I sat in my room staring at the wall crying and when I wasn't crying I was fuming and planning to murder the council and hospital that killed Louise. I had bills that needed paying, shopping to do, all sorts of things but I didn't give a crap about any of it. I was so over everything by that stage I didn't even talk to people who came around to see if I was alright. Nobody wants to deal with deaths on Christmas, Easter or someone's birthday because they are meant to be happy occasions. And nobody wants their friends or family buried on the same date (albeit a year apart).

You friend who is visiting will help you through this and you will be grateful for their help. Just get the funeral done and at least that bit is behind you and then you can try to sort out the rest of the mess. Remember, it's one day at a time and do a little bit here and a little bit there. Don't expect to do everything in one hit and don't expect to be a normal fully functioning human for some time after this is over.
 
I love you guys. You might be internet strangers in completely different parts of the world, we've all different lives and awful experiences and grief...

It's so hard to describe. and I feel so selfish. There are much worse things happening around the world, people go through and survive much worse!! Yes, I'm allowed to be a bit selfish in grief, but I've gone too far, and it doesn't feel like me. I always used to be the capable one, the one who manages crisis situations, calms and supports others, and tries to be a source of strength. That's how I feel internally, how I used to be, how I've had to be when there's no other option.

The only thing holding me back is me. My own brain. Things need done, just have to fuplie do it already.
 
I've been prescribed diazepam to manage my anxiety/agoraphobia/coping as we're going through all this since mum's diagnosis, end of Oct/beginning of November I think it was, and it did help. Doc knows I don't want to be on it long term, I'm aware of the addiction risks and don't feel dependent as such - I'm confident I can come off it once we're through the funeral, and things can be slowly worked on, and hopefully therapy will available soon too.

I've been on 2mg up to three times per day, and it did help me calm down enough to focus and function. But it is also one of those drugs that you will develop a tolerance to over time, and he did say if I'm spinning out, to take 4mg when needed. I've done that occasionally, and also haven't always taken three tablets in a day, only when I feel like I'm beginning to spin out and panic, or feeling angry/tense with family. But haven't needed to do it often enough to increase the amount prescribed per week.

But I'm nearly out of them. Trying to save them for Monday, which will be the hardest day. But I'm spinning out and freezing up tonight, when I need to be preparing for my friend arriving, so took 2mg, reluctantly. But it's just not as effective, no longer helping me calm enough to focus on get on with stuff.

Tempted to call the surgery Monday morning and see if I can get an emergency script for Monday, under the circumstances... but also hate bothering them, would need to speak to a GP ASAP of course, and don't want to be labelled a drug seeker. Did some reading up on tolerance, and seems like if that happens they might be able to prescribe a different one.

The plan so far has basically to help me function enough to get through this, while we also lined up other outside help, and I try to climb out of the depression while working through the fogginess of grief. That while neither doc nor I think a benzo should be a long term thing, and I'm always wary of addictive stuff since dad was a functional alcoholic. But I think he also knows and trusts me well enough by now to know that I want to work through my stuff in therapy, make lifestyle changes etc, and deal with the issues in a healthier, long term way and with hopefully more coping mechanisms.

I know what's stopping me. It's because this is mum and dad's house. Not mine. Everything is theirs, is a reminder, is something I have to make a decision about whether to keep it, donate it, store it - and it's painful. Every step of it hurts, and it's slowing me down a lot, because I can only do it in short bursts before I need a break.
 
I haven't replied to this in some time and I just want you to know that it isn't due to insensitivity or anything like that. The simple fact is that I have zero clue as to what to say to help so figure it best to not say much... :(

Don't be sad, or sorry! It's really hard to know what to say in these situations, I feel the same way!

But even saying this, what you said, helps. It helps to know that other people care, you know? Thank you, it does mean something to me, and I appreciate anyone who cares to even read along! It's not a fun thread, so I wouldn't blame anyone for not following along, the thread is huge now and I blather on mainly to vent, seek some advice at times, and just to try to help keep myself as sane as possible. ;)
 
4am, tired, but don't want to sleep. Listening to music and planning what I need to do tomorrow and Monday. Sleep usually means unpleasant dreams, so I find myself not wanting to, and appetite is still gone. I've lost a stone since mum passed, although that's a good thing, I needed to shed that anyway. But it's made me a rubbish host.

I've just lost interest in food, and have no desire to cook. The kitchen is still dad's kitchen, in my mind, and it's a mess despite deep cleaning and sorting different things, but there's too much... it's overwhelming. Dad rarely let anyone else cook in his kitchen - actually I didn't learn to cook until I left home, and other students taught me basics and then I went on.

I'm not a great cook by any means, but I used to enjoy cooking and baking at times. My friend and I will go shopping tomorrow and stock up a bit since people are coming, but I'm going to rely on him to help me choose some simple healthy foods that don't need too much prep while I'm in this stage. I think once kitchen is more sorted, clean and organised the way I'd prefer it, and I'm not so stuck in grief, I'll be able and feel inclined to cook more often, instead of living on sandwiches and beans on toast.

I feel like I've forgotten how to human, how to adult. How pathetic is that? Urgh.
 
"There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love." – Washington Irving
 
"There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love." – Washington Irving
I’ve been bawling my eyes out all night, I needed to read this
 

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