a “quick” emotional vent

[Ladytcat2003]

As a few of you might know I have Tourette’s syndrome, and recently I had a severe mishap resulting in a slightly dislocated neck plate and severe tearing in my fingers tendons and my arm muscles .
I’m going to be discharged from the hospital in a few days but until then I’m hospital bound can’t get up can’t feed my fish and I can’t see my family due to Covid.
Due to the severe rips in my arms and muscles and tissues do to severe Tensing and tics I may never be able to regain fully functionality over my fingers and I am likely to have a lesser ability to use my damaged arm. I currently can’t move my fingers and they have nerve and tissue damage. I feel so weak and the blasted doctors aren’t listening to me, and I’m so fed up being a human pin cushion because of my Leucism and Tourettes combined.
I can’t feel my arm or fingers at all and the doctors are dismissing it as a side affect because of my skin differences.
Of course this happened a few weeks before my birthday with my sisters, and one of my sisters is being putt in urgent care because of her possible having cancer.
I’m a emotional mess and I’m so upset with the world atm
This week has been absolute garbage

I am so sorry to hear that you are having such a hard time. It will get better, that I can promise. But, I can't promise when. I too, celebrated my birthday in the hospital. Definitely not what I would have preferred. I ended in the hospital because I fell at home and I was so weak I couldn't pick myself up and my son, he has autism, he's an adult as well, couldn't get me up and I had no strength to help him, help me up. A neighbor and her husband helped and they put me in the car and took me to the hospital. Nothing was broken or buised. Thank God for that. But the ER doc said he "didn't know how i was still alive? My blood level was down to 6. I was almost gone. I had to have an immediate blood transfusion. But being a CNA for 30+ years, I didn't see any signs of blood loss...ever. So needless to say, I'm a month out of the hospital but have had appointments every day since. Trying to figure out why I lost so much blood? Please, keep your head up and continue to be proud of who you are. I am an old lady, so I know this is sounding like an old and cliché, "We have to play cards with the ones we are dealt, it is up to us as to how we play them." "We can allow our situations make us or break us. The choice is up to us."

 

[Ladytcat2003]

No. At least not to my knowledge. In fact there are people with Tourette’s who have to have medically induced comas and their tics get so bad that they cannot function - their tic attacks just don’t stop or they have a particularly nasty paralysis tic.

Perfect example of this is a teenager, Zack Lamb. Who featured in a documentary a few years back. He had tics so bad that he has had to spend weeks in medically induced comas because his body just wouldn't stop having a tic attack.

A tic attack is build up of tics and a inability to stop doing them. They hit you like quick succession and you get no rest from it until you've exhausted yourself of energy.

Think of a hose. You keep it on but close the valve. The pressure builds and builds till you open it and it comes out much more powerful then before

I say it's a lot like seizures but you know what's happening through the entire episode and with seizures, most don't remember a thing, but the end result is the same...exhaustion and a longing for it to go away.

 

[Ladytcat2003]

Tell the doctors and nurses you can't feel your arm. Repeat it until they do something. You could have a pinched nerve or worse and they need to find out what is going on, not dismiss it because your young and have other issues.

Kick up a stink and say I want to talk to the head doctor and head nurse. I want something done about the fact I can't feel my arm.

They will think your being annoying and a pain in the butt but if you can't feel your arm, that is an issue.

Here's hoping you make a full recovery and get well soon.

I figured out that if you threaten to speak to "Hospital Administration", they tend to listen a little bit better. Everyone in the hospital system has someone over them that signs their checks. None of them want to be liable for malpractice. If you say the right words, in the right way, you can get them to do anything you need. Just remember being angry and showing that anger will get you stonewalled. There are ways to get your anger across without having them label you as a "problem patient." And that doesn't resolve anything.

 

[Lemon]

I say it's a lot like seizures but you know what's happening through the entire episode and with seizures, most don't remember a thing, but the end result is the same...exhaustion and a longing for it to go away.

I agree. That’s a great way if describing it.

I figured out that if you threaten to speak to "Hospital Administration", they tend to listen a little bit better. Everyone in the hospital system has someone over them that signs their checks. None of them want to be liable for malpractice. If you say the right words, in the right way, you can get them to do anything you need. Just remember being angry and showing that anger will get you stonewalled. There are ways to get your anger across without having them label you as a "problem patient." And that doesn't resolve anything.

I can be quite the Karen when I need to be, I have had experience and have actually had to talk to hospital administration because they stabbed me with a needle when I didn’t need to be, papers got messed up so I had a blood test when i didn’t need one

"We can allow our situations make us or break us. The choice is up to us."

true true

 

[Fray]

No. At least not to my knowledge. In fact there are people with Tourette’s who have to have medically induced comas and their tics get so bad that they cannot function - their tic attacks just don’t stop or they have a particularly nasty paralysis tic.

Perfect example of this is a teenager, Zack Lamb. Who featured in a documentary a few years back. He had tics so bad that he has had to spend weeks in medically induced comas because his body just wouldn't stop having a tic attack.

A tic attack is build up of tics and a inability to stop doing them. They hit you like quick succession and you get no rest from it until you've exhausted yourself of energy.

Think of a hose. You keep it on but close the valve. The pressure builds and builds till you open it and it comes out much more powerful then before

Lemon, I've only been on here such a short time but you were, I think, the first to welcome me. It's such a rotten thing for you to be going through and the hospital system really sucks sometimes. Some really wonderful doctors and nurses, but so hard to be "heard" a lot of the time. Have any of the medical staff talked about medical marijuana? There are a lot of studies showing really promising evidence of it reducing symptoms. One of my former clients has Tourettes, lovely lovely man, and he doesn't use the medical marijuana, but......well you know what I mean I'm sure. He gets great relief and a reduction in his stress levels. Just a thought. You have a great support network here, I think they all really like you!! Take care

 

[AdoraBelle Dearheart]

Lemon, I've only been on here such a short time but you were, I think, the first to welcome me. It's such a rotten thing for you to be going through and the hospital system really sucks sometimes. Some really wonderful doctors and nurses, but so hard to be "heard" a lot of the time. Have any of the medical staff talked about medical marijuana? There are a lot of studies showing really promising evidence of it reducing symptoms. One of my former clients has Tourettes, lovely lovely man, and he doesn't use the medical marijuana, but......well you know what I mean I'm sure. He gets great relief and a reduction in his stress levels. Just a thought. You have a great support network here, I think they all really like you!! Take care

@Lemon is 14...

 

[Fray]

@Lemon is 14...

So Lemon, you are 14? Am I reading that right? Medical marijuana is not age regulated and does not have the same effects of "regular" marijuana. It is all about the medical benefits rather than the "social" ones. I don't know your regulations in the states, but here in Aus we are finally looking like making it available. It's been proven to help with so many ailments, the effects on Parkinsons is incredible.

. But this is just my opinion, not meant to be medical advice at all. Nature usually provides us with what we need....we just need to look for it

 

[Colin_T]

We don't need more pot in Australia. There are enough stoned 14 yo's around here as it is

But for some people it is helpful especially when they have terminal illness or chronic pain that isn't responding to normal pain killers.

 

[JuiceBox52]

We don't need more pot in Australia. There are enough stoned 14 yo's around here as it is

But for some people it is helpful especially when they have terminal illness or chronic pain that isn't responding to normal pain killers.

You shouldnt come here then. Cant even drive through town or go to the grocery store without getting a whiff or five. I personally cannot stand the smell

 

[Colin_T]

I have issues with pot heads. I worked with a guy who was one and used to smoke and keep his weed in a quarantine facility. If it ever got found we would all end up in prison and never be able to import fish again. The same guy stuck a heap of fish into the display tanks even though they were for customers. And he used to give his friends entire set ups (3 or 4 foot tank on cabinet with hood, lights, heater, filter, gravel, plants and even fish), and never asked for money. The shop went bankrupt because of that. It was a good shop too, just wasted by a moron.

 

[Fray]

I have issues with pot heads. I worked with a guy who was one and used to smoke and keep his weed in a quarantine facility. If it ever got found we would all end up in prison and never be able to import fish again. The same guy stuck a heap of fish into the display tanks even though they were for customers. And he used to give his friends entire set ups (3 or 4 foot tank on cabinet with hood, lights, heater, filter, gravel, plants and even fish), and never asked for money. The shop went bankrupt because of that. It was a good shop too, just wasted by a moron.

None of that has anything to do with medical marijuana. It doesn't have the same effect as what you are talking about. A simple google search will tell you that. The breakthroughs on the science of it are incredible, nothing to do with "potheads" and "stoned 14 year olds". It doesn't get you "high". Same as anyone having an operation depends on morphine for pain relief, doesn't mean they're are going to start hanging around in opium dens.

 

[connorlindeman]

You shouldnt come here then. Cant even drive through town or go to the grocery store without getting a whiff or five. I personally cannot stand the smell

I cant stand the smell either. They just made it legal to use it without a license here in NJ. Not too many people in my area use it thankfully.

 

[outofwater]

Lol, for a forum that's mostly "progressive" it's funny to see the reaction to pot heads. Same exact thing happens here, the village idiots voted for legalization and to let shops open everywhere, then started campaigns and rage posting when the stores started opening near to their homes or other places they deem "out of bounds". As with everything else, they will vote for it and then act puzzled when the consequences come knocking at their door. Stupid.

 

[Lemon]

Thought I would update y’all on the whole /thing/ so I was released from the hospital today and we actually did end up doing the surgery to sew the nerves back together however I am still bed bound mostly because they seem to think that will help with my stress
But anyway it’s better then the hospital where everyone stares at you when you have a tic or they ask if your having a seizure(normally interns or student doctors) . It’s nice to be back with my family, finned furred and human.

 

[FranciscoB]

Lemon, I don't really know you, but I wish you the very best of outcomes possible. Good energies for you, your sister and all yours. Hopefully things improve for you All.