a “quick” emotional vent

[Lemon]

As a few of you might know I have Tourette’s syndrome, and recently I had a severe mishap resulting in a slightly dislocated neck plate and severe tearing in my fingers tendons and my arm muscles .
I’m going to be discharged from the hospital in a few days but until then I’m hospital bound can’t get up can’t feed my fish and I can’t see my family due to Covid.
Due to the severe rips in my arms and muscles and tissues do to severe Tensing and tics I may never be able to regain fully functionality over my fingers and I am likely to have a lesser ability to use my damaged arm. I currently can’t move my fingers and they have nerve and tissue damage. I feel so weak and the blasted doctors aren’t listening to me, and I’m so fed up being a human pin cushion because of my Leucism and Tourettes combined.
I can’t feel my arm or fingers at all and the doctors are dismissing it as a side affect because of my skin differences.
Of course this happened a few weeks before my birthday with my sisters, and one of my sisters is being putt in urgent care because of her possible having cancer.
I’m a emotional mess and I’m so upset with the world atm
This week has been absolute garbage

 

[foxgirl158]

Oh Lemon. If I could give you a hug I would. I’m so sorry friend

 

[JuiceBox52]

Aw no, i totally understand if its any consolation your fish will be fine for up to 2 weeks without food. I totally understand the frustration of torn muscles, numbness (my legs have been totally numb/partially paralyzed all week), doctors gaslighting you, pain, and neverending tests. Hang in there, PM me if you want someone to talk to

 

[OliveFish05]

Lemon, I’m so sorry

 

[Colin_T]

Tell the doctors and nurses you can't feel your arm. Repeat it until they do something. You could have a pinched nerve or worse and they need to find out what is going on, not dismiss it because your young and have other issues.

Kick up a stink and say I want to talk to the head doctor and head nurse. I want something done about the fact I can't feel my arm.

They will think your being annoying and a pain in the butt but if you can't feel your arm, that is an issue.

Here's hoping you make a full recovery and get well soon.

 

[JuiceBox52]

Tell the doctors and nurses you can't feel your arm. Repeat it until they do something. You could have a pinched nerve or worse and they need to find out what is going on, not dismiss it because your young and have other issues.

Kick up a stink and say I want to talk to the head doctor and head nurse. I want something done about the fact I can't feel my arm.

They will think your being annoying and a pain in the butt but if you can't feel your arm, that is an issue.

Here's hoping you make a full recovery and get well soon.

Even multiple trips to the emergency room didnt solve why i cant feel my legs. We made a fuss too. Sometimes they just dont listen or dont know whats wrong. They told me "well its not a severe spinal cord injury" and sent me home after an xray

 

[Deleted member 149562]

Aw no, i totally understand if its any consolation your fish will be fine for up to 2 weeks without food. I totally understand the frustration of torn muscles, numbness (my legs have been totally numb/partially paralyzed all week), doctors gaslighting you, pain, and neverending tests. Hang in there, PM me if you want someone to talk to

Ask for a Cauda Equina MRI....I warn you now that it is not a pleasant experience but if done correctly with gadolinium contrast in the Conus Medullaris and Cauda Equina part of your lumbosacral area it should give you the answer that you require. It has to be very specific both in contrast used and the area in which the contrast is aimed at.

Standard MRI of the area without any contrast is useless in Cauda Equina diagnoses.

Cauda Equina literally translates to horses tail cos that is what it looks like under the right contrast, all the nerves from the body meet at the sacral area and it literally looks like a horses tail. As a human gets older or has suffered previous injury the bony area can become fused and it traps the Cauda Equina causing initial pins and needles in the legs that go onto full paralysis, bladder & bowel incontinence and other symptoms. If caught early enough it can be reversed with surgery, if not caught early enough it can lead to a life in a wheelchair.

Push for the specific test....many hospitals shy away from it or try to convince patients that its a waste of time....it isn't a waste of time cos it can also show up other spinal conditions like spondylosis.

 

[JuiceBox52]

Ask for a Cauda Equina MRI....I warn you now that it is not a pleasant experience but if done correctly with gadolinium contrast in the Conus Medullaris and Cauda Equina part of your lumbosacral area it should give you the answer that you require. It has to be very specific both in contrast used and the area in which the contrast is aimed at.

Standard MRI of the area without any contrast is useless in Cauda Equina diagnoses.

Cauda Equina literally translates to horses tail cos that is what it looks like under the right contrast, all the nerves from the body meet at the sacral area and it literally looks like a horses tail. As a human gets older or has suffered previous injury the bony area can become fused and it traps the Cauda Equina causing initial pins and needles in the legs that go onto full paralysis, bladder & bowel incontinence and other symptoms. If caught early enough it can be reversed with surgery, if not caught early enough it can lead to a life in a wheelchair.

Push for the specific test....many hospitals shy away from it or try to convince patients that its a waste of time....it isn't a waste of time cos it can also show up other spinal conditions like spondylosis.

Ok. I have an order for a spinal and brain mri but i will ask for that as well. Would that cause numbness that fluctuates in severity? At times it was my whole legs up to my lower back, now its mostly between my legs in the whole pelvic area but earlier was whole legs again

 

[Deleted member 149562]

Ok. I have an order for a spinal and brain mri but i will ask for that as well. Would that cause numbness that fluctuates in severity? At times it was my whole legs up to my lower back, now its mostly between my legs in the whole pelvic area but earlier was whole legs again

Cauda Equina can cause intermittent symptoms such as numbness, especially around the thigh, lower back and back of the leg area. It is often misdiagnosed as Sciatica.

It is a difficult thing to diagnose that is why alot of hospitals shy away from it, a neurologist with a specific spinal speciality is required in most cases. The average radiologist or orthopaedic or neurologist consultant can miss the tell tale signs unless it is extremely advanced when it becomes obvious.

May take some hunting but find a neurologist with spinal speciality.

 

[Lemon]

Well after complaining for hours they finally checked my arm/hand and I have severed nerves and it’s possibly to damaged to stitch back together all of them and even if they did it wouldn’t stay together and long enough to heal because of my Tourette’s being so severe currently due to stress. A nerve/tendon graft is also out of the question because of my Leucism and Tourettes. I am so angry at these dang people, I’m not losing a blasted arm because they can’t to their job.

 

[JuiceBox52]

Im sorry lemon. I understand

 

[Colin_T]

can they put you in a coma for 2 weeks after fixing the nerves so it can heal properly and your Tourette's won't cause it to break?

 

[Lemon]

can they put you in a coma for 2 weeks after fixing the nerves so it can heal properly and your Tourette's won't cause it to break?

No. At least not to my knowledge. In fact there are people with Tourette’s who have to have medically induced comas and their tics get so bad that they cannot function - their tic attacks just don’t stop or they have a particularly nasty paralysis tic.

Perfect example of this is a teenager, Zack Lamb. Who featured in a documentary a few years back. He had tics so bad that he has had to spend weeks in medically induced comas because his body just wouldn't stop having a tic attack.

A tic attack is build up of tics and a inability to stop doing them. They hit you like quick succession and you get no rest from it until you've exhausted yourself of energy.

Think of a hose. You keep it on but close the valve. The pressure builds and builds till you open it and it comes out much more powerful then before

 

[Rocky998]

I'm so sorry I didnt see this thread earlier.

Oh my goodness. I agree with the above the first post, if I could hug you I would! Sadly, I cant say I relate but I pray for a quick recovery and hope the darn doctors will treat you for the nerve damage...
Good on you for getting their attention and "bugging" them until they did something!

 

[Colin_T]

There has to be something they can do. This is just ridiculous. Your young and healthy and they need to fix the nerves so you can lead a normal life.