What became of the girl who went to europe to get treated ?
- Thread starter anewbie
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@JuiceBox52, I think she stills needs more money from the go fund me project. It costs about $150,000 US for the surgery in Spain. I hope she's alright.
And she's older than 14-16...
I think shes like 23.
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And married not too long ago.
OP
OP
14-16 year olds still get married ?
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OP
You are presuming wrong.
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OP
colin did a similar thing in the first response; she hasn't posted since dec 4th so maybe she is busy or flying or something - anyway i think my question was answered so the thread can be locked or we can wait and see if she comments
Hiii! That’s me! I’m 21! I raised enough for testing and consultation and went to Spain to visit the neurosurgeon and get more in depth testing, but I’m still raising money for the three surgeries he will need to do (cervical spinal fusion from skull to C5, tethered spinal cord release, and jugular vein decompression and possibly adding a stent)
Even just that short trip provided SO much clarity which has helped with local doctors treating me more like a human.
In the meantime, I’ve gotten a central line placed that goes into my heart (I actually just had it surgically replaced today!) and it’s been super amazing with helping manage some symptoms. I also have a home nurse who comes once a week, and am currently getting set up with a state provided at home caregiver. Fighting with insurance has been a constant battle since a new diagnosis as of January, we are hoping that in the new year they will approve a potentially lifesaving treatment (IVig) for the thing that’s attacking my brain.
While one of my conditions is progressing faster and scarier than we’d like, thankfully my spine, with non-surgical management from the Spain doctor has been a bit more stable. There have been some scary things the past few months, a sepsis scare with a fever of 105.3, multiple occasions where my heart has stopped and pulse was lost, respiratory distress due to my neuromuscular condition etc, but I’m still here and I plan to keep going!
Unfortunately fundraising has been temporarily slowed down and out on hold as I am in the middle of a legal battle with my ex husband as well as a witness to a felony investigation and that has been taking up my time and limited energy, but going into the new year I hope to pick up on it again and make some headway in the medical aspect.
Here’s some photos from Spain and other recent medical endeavors. My mission in life is advocating for other patients and raising awareness, you can learn more about my issues, see my gofundme, follow me to stay updated, and follow my new podcast and soon-to-be educational nonprofit at this link! https://linktr.ee/giusiana
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Oh Juice, I don't know what to say. Sad about this but nice to see you smile in some pictures.
What's the central line in your heart and what does it do?
What's with the ex and felony investigation, they aren't related are they?
Didn't you just get married last year?
If yes, there shouldn't be much to sort out, you take your stuff, he takes his and anything you bought together just split it. Or is he being a duck?
What's the central line in your heart and what does it do?
What's with the ex and felony investigation, they aren't related are they?
Didn't you just get married last year?
If yes, there shouldn't be much to sort out, you take your stuff, he takes his and anything you bought together just split it. Or is he being a duck?
I buried my girls in 2011 and don't want to see you die either, at least not until your old and decrepit like me. What you are going through breaks my heart and is horrible for me but must be much worse for you. I just wish there was something I could do but there isn't.@Colin_T i see your frowny face, smileeeee I’m not dead yet
It’s similar to a port, but not quite. It’s tunneled over my collarbone and inserted into the jugular vein and threaded into the main of my heart. I give myself medication through it into my bloodstream, and I also get my hydration through IV fluids since I can’t eat/drink much by mouth.
Unfortunately they are, I cannot speak much about it, but I am considered the victim witness to the states case against him
Yes, we were married 9 months before what happened happened. Unfortunately he is definitely being a duck. The process is very slow, he’s refusing to sign, and he’s turned everyone against me in the process. But, I’m safe now (well mostly, the cops still are closely monitoring me when I go to events) And that’s what matters
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